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With diseases like Alzheimer’s, caregiving can be difficult because change is constant, and dementia confuses everyone. It doesn’t help that medical advice is often weak, treatments are ineffective, and diagnostic uncertainty leaves everyone guessing.

Families tend to fall apart when memory loss occurs, and mine was no different. Usually, one person—often a daughter—feels called to care; in our case, that person was me. As I took on the role of my mother’s caregiver, I found myself unprepared.

I have earned multiple health degrees and practiced medicine as a physician assistant for decades, but my medical background didn’t help much when my mother began to forget. Like many other family caregivers, I didn’t know what to do when dementia entered our lives, even though I had ten years to learn.